PREFACE
We began thinking about writing this book, in
the Spring of 1991, because we believed that new genetic knowledge and
technology posed challenges not only to traditional social practices, but also
to ethical theory. We believed, as nearly everyone does, that ethics should
provide guidance for social practice. We also believed that our ethical
understanding--the reasons, principles, and theory we draw on--itself has
developed in response to specific challenges of social life. Consequently, we
thought, the new human capabilities genetics creates requires an examination of
ethical theory, not just an application of it. What distinguishes this book is
the conviction that we must look deeply inward to the core of our field as
moral and political philosophers, as well as outward from it toward the
engagement of social practices with new genetic powers.
Because our goal was to produce a sustained
and systematic analysis, we have produced a multi-authored book, not an
anthology of separate articles. Although all four authors shaped all of the
chapters, there was a division of labor. Allen Buchanan is the primary author
of the Introduction, Chapters Three and Seven, and the Appendix on Moral
Methodology. Dan Brock is chiefly responsible for Chapter Five and shares
primary responsiblity with Norman Daniels for Chapter Six. In addition, Daniels
is the primary author of Chapter Four. Daniel Wikler is the primary author of
Chapter Two and of Chapter Eight (with some input from Buchanan). Although Elliot
Sober did not work on other parts of the book, he is the sole author of the
Appendix on Genetic Causation.
Skillful copy-editing
by Linda Starke has produced a degree of uniformity in style, but differences
among the authors regarding philosophical substance remain, in particular
regarding some aspects of the theory of just health care and the place of
equality of opportunity in a comprehensive theory of justice. In a few cases
these differences inevitably manifest themselves, in rather subtle ways, in the
book. This necessity we regard as a virtue; the differences among us represent
hard philosophical choices at the frontiers of ethical theorizing; we have
attempted to signal their presence clearly to the reader, believing that they
add richness to the discussion and will help dissipate any illusion that there
is one, clearly superior ethical framework that best responds to all the
problems. From the outset of this project the authors were keenly aware
of a fundamental limitation: although our topic clearly has interdisciplinary
dimensions, we are all philosophers, not geneticists, social scientists, or
historians. Because of generous funding from the Program on Ethical, Social,
and Legal Implications of the Human Genome Project (now called the Human Genome
Institute), we were able to enlist an impressive interdisciplinary panel of
advisors who provided invaluable guidance a critical junctures during the
course of the project: Mark Adams, Paul Billings, Robert Cook-Deegan, and
Richard Lewontin. In addition, Robert
Cook-Deegan, Thomas Christiano, and Clark Wolf supplied line-by-line comments
on a complete draft of the manuscript. The authors are also indebted to David
Benatar and Jeff McMahon generously commented on several key arguments and to
Diane Paul who guided the presentation of the history of eugenics in Chapter
Two. We are also grateful for research and logistical contributions by Sandra
Arneson, David Benatar, Ric (Frederick) Bolin, Dale Murray, and Cindy Holder.
Through the long
process of completing this project we were sustained by the generous and
enthusiastic support of Elizabeth Thomson, Eric Juengst, and Eric Meslin, all
of the Program on the Ethical, Legal, and Social Implications of the Human
Genome Research Institute (formerly the Human Genome Project), which supplied
funding for the project as a whole. Special thanks are also due to Terrence
Moore, of Cambridge University Press, for his editorial expertise and his
enthusiastic support.